The Beth Johnson Foundation Group ensures that the voices of people who have a diagnosis of dementia are actively heard in order to influence all aspects of dementia-related work. The group, based in Stoke-on-Trent, aims to influence professionals from a grassroots perspective by raising further awareness about living positively with a dementia.
Beth Johnson Foundation Group members support each other through sharing experiences of how they are living with dementia in a meaningful manner. At present, the group is made up of four members–Mac, Sue, Doreen and Michael, who meet on a bi-monthly basis to talk about the issues they have come across since living with dementia. The group previously had two additional members whose dementia has now advanced so that they felt unable to continue attending the meetings.
The Beth Johnson Foundation Group hopes to be able to continue meeting and are inviting new members who are living with a dementia to join.